Letter to my GP . . .

The following was attached to my repeat meds request, faxed tonight.

PLEASE ENSURE THIS PAGE REACHES THE PRESCRIBING DOCTOR.

Notes re Nebivolol:-

Last time, when I pointed out that the dose had been increased to 2.5mg TWICE a day in APH, by the cardiologist who originally prescribed it, it’s clear I wasn’t believed. Nor did anybody have the basic courtesy to talk to me about it. That the dose should be increased to the maximum tolerated is normal for this drug. Also, please note the following scan of the APH pharmacy label, verifying this dose.

ScreenShot298

At this dose both my BP (130/70 on average), and heart rate (mid 70s to low 80s at rest), are good. Halve my current dose and both will change for the worse, my HR spiraling up into tachycardia territory, my BP fluctuating wildly. Nebivolol is a drug I’m extremely wary of, and I assure you that were I not deriving considerable benefit, I wouldn’t be taking this dose. As it is, I’m stable, functioning better than I have in over 2 years, and experiencing no identifiable side effects.

Luckily I was sent home from APH with a large supply, now exhausted, otherwise I would have had serious problems.

Re Furosemide:-

I’ve just noticed that my current pack label says “Reduced to 1 in the morning by hospital specialist.”** A specialist, that would be, who hadn’t seen me for over a month (at the time), and is, inevitably, completely out of touch with the reality of my situation.

That reality, as I’ve told Dr. Xxxx several times, is that I’ve been taking 80mg in the morning for some time, as 40 is utterly useless. And even at that level, some days I’m still retaining water like a human sponge.

Again, whatever happened to talking – and listening – to the patient?

**The Nebivolol dose was changed by a specialist too, and one who was on the spot – why does that apparently not matter?

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9 thoughts on “Letter to my GP . . .

    • Me too – I’m really not well enough to go looking for a new GP. Something had to be said, though.

      By the way, did you know that GPs no longer have patients allocated to them? One reason I had no idea who I was writing to, though I’ve got a pretty good idea!

        • I’ve no idea at the moment. I found out just a couple of days ago, from a comment by a GP in Pulse. It does explain, though, why I’m registered with one GP (or thought I was), a different guy always turns out for home visits (it can’t always be his turn). Still, at least he comes out, sometimes even without being asked. I’ve not seen the useless bugger I was registered with since March 2011.

  1. Hurrah for someone prepared to tell it like it is. I had minor problems compared to yours, but found my Euro MEP 100% better than my lily-livered MP, who was too scared of Govt. whips to say or do anything.

  2. Our GP told me a couple of years ago that we weren’t registered to a specific GP, although when I joined I was told he was my GP.

    However, when I see any other NHS person/department, they always ask the name of my GP, as well as the name of the medical practice. Surely they should know that no one has a specific GP now?!

    • I think what they want is the name of the referring GP – that should keep them happy. No matter what I tell APH though, the name of a doctor I haven’t seen for years remains on my file as the GP of record.

  3. Hi Ron glad to see your trying to get things sorted apparently without the help of medical staff. I really enjoy reading your posts as I also quite ill at the moment but nowhere near what you are going through.

    Question when when you ask a Doctor ect to get straight to the point they dilly dally round the daisy…..my Doctor now knows not to pussy foot around when asked for answers. Why cant they just tell you straight after all we are grown ups.

    • Ha! The nurses, when they first arrived, told me my lymphoedema was curable (I already knew it wasn’t). I think medical types are injected with gallons of bullshit during training.

      As for doctors (a) they love to delude themselves that they know more than the patient (not this kiddie as I once told mine – he wasn’t happy!) and (b) they often don’t have an answer, so hey, it’s bullshit time again.

      Having said that, their answer can be wrong. When I was 10 my parents were told I was dying. When I was 17 I was told I’d not see 40 (I’m 68), and in hospital recently I was told I was going to die and there was nothing they could do about it. Still here, and improving!

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