Nurses came and re-did my bandages this morning, so that’s OK. They also came armed with a load of instructions, from the hospital, on how to care for my leg ulcers. I do not have bloody leg ulcers, I have lymphoedema FFS! These conditions are not remotely similar and treatment is entirely different.
Then I got my ultrasound appointment in the mail, which says its purpose is to assess my varicose veins. I do not have fucking varicose veins! The consultant knows this, he asked me, and had a look for himself, so why the hell this referral?
Neither of these things fills me with confidence. Is it incompetence, have I been confused with someone else – what the bloody hell is going on?
And the description of the scan process strongly suggests that it’s extremely painful for anyone with lymphoedema, and that I’m likely to come out a hell of a lot worse than when I went in. And if there’s one thing I really don’t need, it’s anything that will make me worse – I simply have no reserves, physical or psychological, to deal with that.
So, when I get there, before anything else happens they’ll be told that both legs, from knee to toes, are immensely painful (something which the compression process exacerbates greatly, and if anything they plan to do will make that worse, then they can forget it. And I’m 100% serious about that.**
I’ve been on the ragged edge for months now, and fuckuppery like that above does nothing to improve matters.
** Over the past year I’ve lived with more extreme pain than most people would encounter in several lifetimes, and it’s still going on. I’m not about to allow anyone to inflict even more pain on me for the sake of what I feel is a pointless diagnostic procedure (no varicose veins, remember?).
UPDATE: I shall not be having this scan – see my reply to the comment from TTD for my reasons.