District nurse cock-up…

13.30

I’ve phoned the district nurses to find out what’s happened to my appointment for today. I saw a nurse in the building this morning, so it seemed unlikely that anyone would be coming back later in the day.

So I phoned and asked, politely, if anyone was coming to change my dressings today. And – surprise, surprise – there’s no appointment scheduled for today – it’s tomorrow. This despite the last thing the staff nurse said on Tuesday was that there would be somebody here on Thursday – today – just not her.

Can I wait til tomorrow?

No, my legs are a blood-soaked mess, I’m in excruciating pain, and they stink, they need attention.

Massive surliness at the other end! And they’ll try and get an auxiliary nurse out today. The fact that the nurse will be an auxiliary isn’t, of itself, a problem – that’s quite normal, However, there skill levels vary wildly

Try? If they don’t succeed, someone’s getting their arse kicked. Then she slammed the phone down without giving me a chance to say thanks – ill-mannered git.

Between these buggers and a GP who won’t prescribe essential drugs, I’m feeling conspired against!

Both of them appear to forget they’re supposed to provide a service – without sick people they’d be on the dole.

15.00

And my favourite** nurses have been, cleaned up my legs, an incredibly painful process, and patched me up (that’s was no fun either), and were horrified to see how badly I’d deteriorated since Sunday when one of them was here last.

**Favourite because they listen to me – a lot don’t – they’re gentle, when they  can be (it’s not always possible and some pain is inevitable).

I’ve taken photos too. I actually forgot to take them until after my legs had been cleaned up – so believe me when I say that this is as good as it gets! Sorry about the quality – I was pretty much in shock from the pain.

Left leg, inner Left leg, outer Right leg, inner Right leg, outer

Left leg, inner.                 Left leg, outer                 Right leg, inner               Right leg, outer

Click pics to view full size, Back button to return.

I wasn’t going to post them, as I figured you’d suffered enough but, if you’ve had enough, I suggest not clicking the thumbnail.

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6 thoughts on “District nurse cock-up…

  1. They look worse than the last photos. And as you have to suffer the pain and discomfort, it’s the least we can do to see how bad they look, so don’t worry about posting the photos.

    I would have thought that the dressings need changed every day anyway, when they’re as bad as that.

    • They do now – they’ve gone to hell since Sunday. On Sunday there was a lesion on my left ankle the size of a shilling. By Tuesday, it was as big as my hand – that, and the pain, is what motivated me to get rid of the compression. And it’s quite obvious my legs are infected again.

  2. Oh dear God! Ron, this needs proper hospital or specialist nurse treatment! They must be so painful for you and I am cringing thinking about it, and you know how I was with my leg bandaged for nearly 10 months!
    I had the district nurses looking after me but they always had to be told, via letter, from the specialist nurse at the plastics clinic. I usually had to remind them or teach anyone new, but they where really good about it. I know how lucky I have been and am so thankful for it.
    Your GP’s ought to go back to training and keep up with what is said by consultants.
    I really feel for you Ron 😦
    Jay x

    • Thing is, Jay, it was the hospital that screwed up. My right leg was still infected – the smell was a give-away – when they decided it was a good idea to put it in compression. I knew it was wrong but I also felt that they should know what they were doing, and I was worrying needlessly.

      Indeed, for a week, everything improved quite dramatically then – equally dramatically – it all went to hell very quickly as the infection resurfaced several orders of magnitude worse than it had been. Clearly, I should have put my foot down and refused the compression. In future, if I don’t think it’s right, it doesn’t happen.

      What really worries me, though, is that I can’t eat, the pain makes me so nauseous I have no appetite. And if that continues, I’m going to be back where I was in March-April – in seriously deep shit.

      Ron.

  3. I hate to even suggest this but…is it worth going to A&E, just for immediate treatment; refuse to be admitted unless its to the correct ward & under the correct consultant ? Have to admit I’m out of ideas other then that.

    Was speaking to my lymphoedemic friend yesterday and she related how her mother was in the same position last year (with similar pics) & that is what they threatened – the nurses then tried a different (more expensive) dressing and her legs cleared up; and they still are.

    So sorry to read this, all best as always love xx

    • It took about an hour for the nurses to arrive yesterday. Even before the current NHS crisis A&E waiting time was rarely under 4 hours – I shudder to think what it is now.

      My main problem, though, is a witless staff nurse who will tell me one thing (that someone will come Thursday), but by the time she gets back to the office will have either forgotten or changed her mind. Neither, from the patients’ point of view, is acceptable.

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