My nurses are taking the piss.
Yesterday I was told that my two lesions had merged into one big ulcer. Not happy, but not unexpected.
Thing is, I can’t actually see for myself due to the awkward location – I can see it clearly only with my camera and it was late yesterday when I thought to check for myself (I take photos at every dressing change). This is the result.
As you can see, while the lesions are indisputably a bit bigger, there are still – clearly – two of them, separated by a “wall” of sound skin.
So what was the nurses’ motivation in telling me that the wall had gone? Why lie about something I can see for myself? If they thought I wouldn’t check they don’t know me very well.
Well, in the next breath they started banging on about compression again and, doubtless, telling me I now had an ulcer was a lever to persuade me to accept it.
NOT GONNA HAPPEN!
I have two holes in my leg, and nobody has ever explained by what mechanism wrapping my leg tightly in multi-layered compression bandages** will heal those holes. I have found no literature on the subject either, and the Lymphoedema Network website is utterly silent on the subject.
**I’ve been told that compression needs to be from toes to nuts. That will leave me with a leg that can’t be bent, which will make life impossible on so many levels. I’ve also been told, with equal certainty and by the same nurses, that it will be from toes to knee. Better, but only a little and, either way, it’s still very painful and more pain in my life I do not need, I have quite enough already.
Plus, I know people who have leg ulcers, and who have been in compression for years, with no improvement, so screw that.
And – most important of all – compression has been tried, three times, twice by nurses, once by the hospital, with the same disastrous results each time.
IT DOES NOT WORK. Not for me, anyway.
Note: These lesions were healing until the idiot nurse spat on them a while back! Yes, it was an accident, but it should not have happened. Now they’re infected and worsening visibly. I think the only way forward is to remove the nurses from the equation and leave me to take care of myself. OK, some nurses are excellent, but some are not, and I have no control over who turns up, so keep me supplied with dressings, and supervised, but otherwise leave me alone.