Check out this post first.
My profiling bed has proven invaluable in the past for getting a good night’s sleep (not so much now, but I’m hoping that will pass), and also for enabling me to sleep – or at least rest these days – without pain. And to elevate my legs to encourage the fluid to drain.
One thing it hasn’t changed is my aversion to the dark. Without light I become extremely disorientated, a problem that first made its presence felt about 4 years ago and is showing no signs of going away. So I have a nightlight, an 8W mini fluorescent bulb in a table lamp on a chest of drawers behind the head of the bed and to one side.
This is fine for everything except reading books in bed, as it casts a shadow. OK, I have my illuminated Kindle Paperwhite, or my Fire HD if I want to read in colour, but sometimes it just has to be paper, and that’s difficult. Not impossible, but at an uncomfortable angle
Then, mooching around Amazon looking for a solution, I found this.
Cost me £3.49, clips to the bed frame and lightens my darkness. It’s now £4.70, but have a good rummage on Amazon, it’s on offer at a variety of prices, starting under £3.
It’s actually attached to the base of the bed, the bed-head is against the wall – I have to sleep sitting up – can’t breathe lying down, something I have major problems making staff understand in hospital, though it’s very common in heart failure and not unknown in COPD. And that’s a major reason for my wanting to stay out of the place – last year they ran out of profiling beds and turfed one guy out of his, giving him an elderly manually-adjusted bed. As he had pneumonia, and major breathing problems, he wasn’t best pleased – they still took his bed. I can’t risk that.
The clamp is just barely big enough so, as you can see, I’ve added a strip of duct tape as extra security, so it doesn’t pop off in the night and plunge me into darkness.
I’ve also made another addition, to reduce the clutter on my bedside table which, overnight, as well as a jug of water and a mug (apart from being for my morning meds, I seem to get very thirsty overnight while I can’t sleep), plus a load of meds, also holds my Kindle, Samsung Galaxy S3, and Galaxy Tab 3 – and too often one of those three winds up on the floor. So far they’ve survived, but they won’t always, so, with a couple of cable ties I’ve attached a spare leather manbag (I have a bunch of them from small leather ones to large Cordura – can’t stand having pockets full of crap and meds**), to the bed frame to hold the Tab 3 within easy reach.
**On the rare occasions I get to go out I have to take my inhalers, enough of all my meds for several days (when I was young, this was in case I got lucky, now it’s in case I get unlucky, and wind up in hospital, so I need supporting paperwork as well!), my Addison’s emergency kit, plus my Oramorph and codeine linctus (the latter being impossible to get in hospital and it’s the only effective cough suppressant).
My original bag, from about 1975, is leather and smaller than a paperback. The most recent one is Cordura, and big enough to take all my stuff and a 10-inch tablet plus assorted electronics and chargers. Oh, the joys of Spoonie life!