Lynn Gildersdale…

Kay Gilderdale has walked free from court, at the conclusion of her trial for assisting in the suicide of her daughter, ME sufferer Lynn, which saw the Director of Public Prosecutions, Keir Starmer, personally lambasted by High Court Judge Richard Brown for pursuing a case utterly without merit.

And so he should – getting a conviction is the CPS’s primary consideration – the validity of a case, and plain, old-fashioned common sense, come a long way behind.

Note: ME is CFS in the US.

Writing as someone who Continue reading

The ME – WHO snafu continues unabated…

The following letter is from Campaigning for Research into ME (RiME), to the NHS Services Inquiry. As it has been the subject of a bulk mailing, I consider it to be in the public domain, and thus there is no copyright infringement.

What concerns me, deeply, is that this letter refers to the 1969 WHO definition of ME as neurological but Continue reading

ME/CFS & the WHO – what has gone wrong?

I have ME. I’ve had it for 24 years and, for all that time, I’ve trusted the literature on the subject, but today that trust has been shaken to it’s very foundations.

I was in the middle of writing a blog post – not this one – about ME and why it’s not CFS, and citing the World Health Organisation’s definition of ME.

WHO ICD-10 G93.3 Multi-System organic/physical Neurological  Disorder

As you may know, the WHO’s definition, dating from 1969 is cited by everybody involved with ME, it’s in all the literature – I’ve even mentioned it myself in passing, but this time, as it was a main plank of my argument, I did what I always do, Continue reading