Updated January 14 2012.
Important – what follows does not apply to regular (or infrequent!) correspondents (I’m sure you know who you are), and I am happy to receive comments about my general, or disability and mobility related posts – I just cannot enter into correspondence about disability benefits. At all. Because it’s taking over my life!
I have asked, politely and for months, first in a sticky post and, latterly, on this page,** that people do not drop problems regarding benefits in my lap (sorry, but major health problems are a no-no too – I have my own to deal with – and, as with benefits, everything I know has already been written here), as I am simply too ill to deal with the same questions over and over again.
** In the hope that this will reach the maximum number of people, and that those to whom it applies will pay attention to it, I’m publishing it as a post, as well as a permanent page.
But I am not being heeded. OK, I dare say I am by some people, and for that I’m grateful, yet the problem persists.
I don’t know whether it’s because people are not reading this message (the previous version), despite its “Read before asking questions” title, or whether they’re reading it and ignoring it – which is just selfish – is a little consideration really too much to expect?
While I have been happy to provide help and advice in the past, especially on the subject of benefits, that phase is over, I’m afraid. And I mean that 100%.
I have stage 4 COPD, heart failure, aortic valve calcification (those last two giving me a life expectancy not un-akin to that of a mayfly), serious ME/CFS, and widespread osteo arthritis (plus long-term physical and neurological damage associated with being struck by lightning 27 years ago). As of this update I might have cancer, too – I’m waiting for tests.
I’m losing my sight, as well.
Right now, to screw my life even more, I’m having to contend with the aftermath of a condition that’s destroyed part of my left lung, so pardon me if I seem a bit shirty!
With the best will in the world, I have more than enough problems of my own to contend with – I really don’t need anybody else’s. Nor – and I’m sorry to be confrontational, but being nice about this hasn’t worked (nor has being nasty!) – will I accept them should you feel minded to ignore all this.
As I’ve said, there is no organisation here, no backup, there’s just me – and I have more problems, of my own, than I can deal with. Most days, simply writing a blog post is as much as I can manage.
I’m dying – deal with it. I have to.
I appreciate that a lot of you have benefits problems, and that this going to get worse, but there are organisations, local to you, who can help, and who have far more resources than I have. Check the Yellow Pages or ask at your local CAB office. And see the links below.
As for the seemingly eternal “why can’t I get DLA?” sorry, I just don’t know, but it is getting harder, from what I’ve read, to make a successful claim. And, with the coalition in power, it’s likely to get harder still.
There is some useful advice on claiming DLA on this post (there is also a request for people not to drop their problems in my lap, yet they continue to do so), and if you type IB50 into the search box, you’ll turn up advice which, although about filling in the IB50 form, is also applicable to the DLA form (the principles of maximising your application – giving it your best shot – are the same regardless of benefit.
And as I’ve said elsewhere, everything I know on the subject of benefits and COPD, ME/CFS, benefits and much else besides, is already on this blog, either in my posts or in existing comments from me. There is a huge amount of information here. You should be able to find what you need using the search widget (in the side-bar).
I shall, of course, continue to publish posts on health-related subjects, as well as covering a wider range of subjects than, perhaps, I have been, but will not be able to enter into any correspondence on the subjects, though I welcome comments from people who play by the rules…
Also, if there are any new developments, either in benefits or COPD treatment, or if there are any sensible developments in the ME/CFS field, you can be sure I’ll have something to say on the subject!
Thank you for your co-operation.
Note: Anybody who reads the foregoing and still drops their problems on me will be treated with the contempt they deserve.