Is my M.E. really Addison’s Disease?

 

The more I learn about Addison’s Disease the more I’m convinced it’s been creeping up on me for decades. Steroids, taken for my respiratory problems (COPD since 1996), have probably slowly trashed my adrenal glands. Taking steroids causes the adrenals to reduce their cortisol output until, eventually, they stop entirely, while also ameliorating the more dangerous effects of adrenal failure, aka Addison’s Disease – it explains so much that has no other explanation but which has tended to be written off as just more ME/CFS crapola.

Consider the timeline:-

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My last letter to my GP re Addison’s Disease…

Hopefully my last, anyway – I still need injectable steroids for Addison’s support, hence this letter:-

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March 29, 2014

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Dear Dr. Xxxxxx

Thank you for your letter of March 26.

I am deeply unhappy to learn that, once again, APH have obscured vital information. What is wrong with these people? Does no-one there do their job properly? This ongoing incompetence is just one of many reasons for my reluctance to go anywhere near the place. I still don’t know, for example, why I spent about 10 days (unconscious for part of the time, I lost track), in the Stroke Unit in August last year – nobody would tell me.

To set your mind at rest, I have

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More on Addison’s Disease…

As you might have read, Addison’s was diagnosed a year ago this month but, hey, here’s a fun fact – nobody bothered to tell me!

I recently figured it out and wrote to my GP (broken link to NICE fixed), requesting that he confirm the diagnosis, as I had received no support or information from him or anybody else during the past year. That was on the 20th – today I got a reply (apparently he’s been on holiday and, of course, no-one had the brains to tell me).

He confirms I have Addison’s – not that I had any doubt, but that matters, as you’ll see  – and says that APH didn’t tell him, either. He’s increased my hydrocortisone (hydro from here on), script.  Don’t know what to, he doesn’t say. We’ll see.

In the meantime I can take antibiotics to treat my leg injury (I have to double my hydro dose if I take antibiotics now – that’s obviously why they made me so ill last year – I didn’t know that).

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I wish that for just one time you could stand inside my shoes…

– Bob Dylan, Positively 4th Street

And just for a brief while – it might bring understanding – I wouldn’t wish longer on my worst enemy.

There are people from whom I expected – not unreasonably since they claim to be friends – a degree of support and understanding for why I am so angry at my doctors, and so scared that their neglect will kill me.

What I got instead, when I asked for a little help and support** was Continue reading