The Addison’s Chronicles – Part 6…

Yes, I know part 5 was only two days ago, but it’s a steep learning curve and new stuff to share comes along pretty quickly (and bear in mind that even though you might know this, there will be someone reading it who doesn’t – and sharing information maximises its value).

So, what do I know today that I didn’t know on Saturday?

For openers, my morning Hydro doesn’t remain in my system long. Diuretics and Addison’s are a poor mix, though the reason why isn’t made clear, but as I pee for Britain (an absurdly precise Continue reading

The Addison’s Chronicles – Part 5…

I can’t help noticing that in parts 2 to 4 I dropped the terminal s from Chronicles. Apologies. I can’t do anything about that without confusing Google but, from now, it’s back.

Infection risk in Addison’s Disease…

One of the first things I learned about Addison’s is that it slows down healing dramatically, especially recovery from infection, which explained why I had such an horrendous year in 2013.

Additional Hydro would have helped, but as the fuckwit endocrinologist at APH failed to tell me I had Addison’s, and my GP failed to spot the reference in my discharge notes until I poked him with a stick a year later, by which time I’d figured out what was wrong with me myself, that didn’t happen.

What I didn’t know, and only found out a couple of days ago, while poking around the online version of the British National Formulary, is that

Continue reading

Tanker drivers’ strike and the long-term sick…

If you’re chronically sick and, as many of us do, get your meds delivered by the pharmacy, you might want to ensure that you’re well stocked by the time the strike starts (if it does, of course – we don’t know yet, despite recent, government-inspired hysteria – talks have just resumed after the Ester break).

The reason, of course, is that Continue reading

Chronically sick? Make sure you get your meds at Christmas…

Yesterday, after retweeting a warning from NHS Inform, on Twitter, for people to ensure they had sufficient meds to cope wit the 4-day closure of GP’s surgeries, I was surprised by the attention it attracted and the response it got.

So I thought, while it’s a bit late for this year, it still might be useful to tell people what my routine is as, for people who are chronically sick, and who, are dependant on their drugs, running out is always best avoided. Continue reading

The right to die for those who are chronically sick…

The Guardian has raised the question of the right to die/assisted suicide for those not actually terminally ill. As I fall into that category, I sent them an email with my response. This, very slightly modified due to hindsight, is what I said.

While not terminally ill in the accepted sense, I have severe ME/CFS, stage 4 COPD (I have never smoked – I had the precursors to COPD, asthma and bronchiectasis, since contracting measles and whooping cough more or less simultaneously at age 2, which trashed my lungs, as did most of a lifetime of other people’s smoke), widespread and extremely painful osteo arthritis, the results of being struck by lightning in 1983, plus a whole raft of other symptoms stemming from that event. I have recently been diagnosed with congestive heart failure, as a result of my COPD.

So, as I say, not what would normally Continue reading