Fighting for my rights again – and getting sick of it…

As I mentioned in this post, I ran out of Phyllocontin on Good Friday.

By then in pretty dire straits, I faxed a repeat prescription request at 01.30 on Tuesday morning, explaining the situation and asking for an URGENT scrip. I didn’t get it.

I phoned the pharmacy this morning (Wednesday), to ask about my missing scrip – discovering that I didn’t have enough breath to talk, and had to waste more of it saying, repeatedly, “No, it’s not the line, I can’t damn well breathe!” Anyway, the upshot was Continue reading

Phyllocontin Continus – a cautionary tale… An update.

Note: This was written on Easter Monday. I mention this to save rewriting it to change the tense – so while past tense is still past, present tense is Easter Monday.

Days 2 and 3, on just one PC tab a day (morning), seemed to go well, day 4 (Monday), not so much (day one, Good Friday, I had the residue of the full morning dose in my system of course).

I’m very short of breath, and profoundly tired (O2 shortfall, presumably, despite my 95% O2 sats which, frankly, I don’t belive), despite sleeping for almost 10 hours last night, though my brain still retains a greater clarity than usual (put another way, less brainfog!), which I put down to there being much less codeine in my system (I found a sheet of 30/500 Co-codamol, but they need to be rationed).

Several things have become clear:- Continue reading

Phyllocontin Continus – a cautionary tale…

Yesterday morning I went into something of a tailspin, as I realised I was going into a 4-day bank holiday without the major component of my COPD meds – Phyllocontin Continus (hereafter referred to as PC). I was also out of Co-codamol, but as I have an emergency stash of DHC that wasn’t much of a problem, other than DHC exacerbates my heart-related oedema, but I can get by on half a dose (30mg), plus a couple of Paracetamol, if I have to. Not fun, but doable.

So after a mini melt-down (surprising how fast depression can come rampaging out of nowhere with a little encouragement – OK now, though), I found a few PC tabs in my carry-pack (the A5-sized leather man-bag that goes everywhere with me and contains my inhalers and a selection of meds). Only a few, though – 4, to be precise. That’s a 25% dose for 4 days, taking one in the morning (normal dose 2 tabs (450mg), every 12 hours), and none at night.

That worked out OK yesterday though, of course, there was the residue of my full morning dose lingering in my system. Today is crunch time. Continue reading

Are Spiriva Respimat inhalers good for everyone?

A question from my search engine slush-pile – not done this for a long time – “is spiriva good for everyone with copd”. Referring to Spiriva Respimat inhalers.

Simple answer – No.

Patients’ responses to drugs vary widely, and no one drug suits all people. Take Ramipril, a drug used to treat heart failure. Many people take this with no problems. I took it Continue reading

Chronic Phyllocontin toxicity…

I was first prescribed Phyllocontin Continus, at 450mg every 12 hours, in 1980. For the next couple of years the hospital monitored my serum Theophylline levels to make sure the dose was both safe and effective (with Phyllocontin, the difference in serum levels between effective and toxic is tiny, hence the testing).

I was very happy with it, side effects (then), were non-existent, and my breathing improved dramatically. Best of all, I stopped Continue reading

Any new developments in COPD?

A question from my search-engine slush pile (and it’s a long time since I’ve typed those words, because nothing new is coming through), “anything new on COPD?”.

The simple – indeed, only – answer is a resounding No. Which is the reason I have, at least for now, stopped writing about it – everything I know is now on this blog.

There have been no really Continue reading

Pain in COPD….

Recently I’ve been suffering greatly from previously transient COPD symptoms becoming permanent – specifically, pain, often severe, in the intercostal muscles (the muscles between the ribs), either on lying down or after a night hour in bed. This can persist for several hours after rising or, as with today, into the afternoon.

Searching the Internet for a cause, I kept getting answers from Google Books popping up, and I have to say that some of the books, which actually look as if they should hold accurate information, are Continue reading

What is COPD, how do I get it?

I’ve covered this question from my search engine list before, from a slightly different angle “I don’t smoke, can I still have COPD?”

Simple answer – yes.

More complicated answer, no, not unless you have some pre-existing respiratory condition(s) (in my case bronchiectasis and asthma), that Continue reading